Here is our personal story with hearing loss-
When Molly was four she was diagnosed with a sensorineural hearing loss called Enlarged Vestibular Aqueduct Syndrome. This is a progressive type of hearing loss leading to deafness. Molly currently has lost all hearing in her left ear and received a Cochlear Implant Dec 2015. We are also waiting to see what wll happen to her right ear as she will more than likely lose all the hearing in that ear as well. Our family is fortunate enough to be in an area that has great special needs programs especially for the deaf and hard or hearing. She attends a school that has an American Sign Language program, Oral program and a Cued Speech program. Molly has excelled in school because of her support system, and the Cued Speech program. When you have a family member who is deaf or hard of hearing, you are constantly learning about how to advocate for them to get what they need. It is an ongoing battle with emotions, insurance companies and every day settings.
We are walking in the Walk for Hearing to not only raise awareness but to raise money for the Fairfax County Public Schools The money we raise will help Molly and her friend Katherine's new foundation host events to help families connect with one another, learn about new products on the market, and help families receive the services they need. This will launch this fall.
Thank for reading about our story and below is more information about the walk and facts about hearing loss. Thank you so very much in advance for your donation. We greatly appreciate it.
The Stefanson Family.
The Hearing Loss Association of America (HLAA) Walk4Hearing increases awareness about hearing loss, helps to eradicate the stigma associated with it and raises funds to provide information and support for people with hearing loss. Since 2006, the Walk4Hearing has raised more than $7.7 million and has become the largest walk for hearing taking place in cities across the United States.
We walk because hearing loss is a public health issue third in line after heart disease and arthritis.
- 48 million people have some form of hearing loss
- 26 million people have noise-induced hearing loss that could have been prevented
- 2 to 3 out of every 1,000 children are born deaf or with a hearing loss
- 60 percent of the people with hearing loss are either in the work force or in educational settings
Hearing loss affects one's ability to communicate every day in different situations - from a dinner conversation at a noisy restaurant, on the phone, to not hearing alarm clocks and smoke alarms. For people with hearing loss, these situations can be become obstacles without the right information and support. HLAA provides the assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss.
For more information about HLAA, please visit www.hearingloss.org.