As you all know, recently I have been diagnosed with severe sensorineural and conductive reverse slope hearing loss. To say it has turned my world upside down would be an understatement. The type of hearing loss, severity of loss, and cause of loss combination is so extremely rare there is pretty much zero information out there for me and doctors have no idea what to do with me. During my millions of hours of research and trying to find support, miraculously not only did I stumble upon someone else with the same exact loss as me (it wouldn't surprise me if we are the only people in the world with the exact same loss), but she happens to also live in OC too! Unfortunately her daughter has recently been diagnosed with the same loss. Every day I fear that Torey has inherited what I have (she has a 50% chance) and one day she will have to battle what I am going through. Cherity and I have decided to fight now, research now, fundraise now, and raise awareness now, to one day help our children and our children's children in the future.
It would mean the absolute world to me to have my family and friends come out to support us. A portion of all donations will be given to my local HLAA chapter. They have already been such a big help to me and I would love to be able to give back to them. Thank you so much for all of your support, kind words, questions, shoulders to cry on, etc during this difficult time for me. I love you all.
The Hearing Loss Association of America (HLAA) Walk4Hearing increases awareness about hearing loss, helps to eradicate the stigma associated with it and raises funds to provide information and support for people with hearing loss. Since 2006, the Walk4Hearing has raised more than $12 million and has become the largest walk for hearing loss taking place in cities across the United States.
We walk because hearing loss is a public health issue third in line after heart disease and arthritis.
- Approximately 48 million Americans have some form of hearing loss
- More than 30 million Americans are exposed to dangerous levels of noise in their workplaces
- An estimated 1 in 5 American teens experiences some degree of hearing loss
- 2.3 million Veterans receive either disability compensation for service-connected hearing disabilities or are in treatment for related hearing issues
Hearing loss affects one's ability to communicate every day in different situations - from a dinner conversation at a noisy restaurant, on the phone, to not hearing alarm clocks and smoke alarms. For people with hearing loss, these situations can be become obstacles without the right information and support. HLAA provides the assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss.
For more information about HLAA, please visit www.hearingloss.org.