Connecticut Walk4Hearing

Team Aleesia

The Hearing Loss Association of America (HLAA) Walk4Hearing increases awareness about hearing loss, helps to eradicate the stigma associated with it and raises funds to provide information and support for people with hearing loss. Since 2006, the Walk4Hearing has raised more than $12 million and has become the largest walk for hearing loss taking place in cities across the United States.

 Hello everyone,

This is our 4th year attending the walk for hearing.We walk to support Aleesia. I am Aleesias mom lindsay and just want to share our story with you.I became pregnant with aleesia in 2007.My beautiful little girl.little did i know the road we would have ahead of us.She was born may 29th 4:06am 7 pds 7 beautiful healthy little girl.i never knew i could love anyone as much as i loved her.way before she was born and even more the minute i held her. Doctor told us she passed all of her tests even her hearing we left the hospital and life went on.she started to get older and we started to notice around a year of age that something didn't seem right.You would call her and she wouldn't look.she wasn't saying any words which she should've been trying to. at least mama or she was tested shortly after she was a year old.she passed i thought OK maybe it's just taking her a little life went back to normal.but me and her family always thought something was not adding up,she still wasn't saying words like she should've been.still didn't come or even flinch when her name was called.I would have to clap my hands to get her attention.she had a second hearing test which she also passed.eventually we had a hearing test again when she was 2 and a half and we finally got the answers we had been waiting over two years for.she was diagnosed with moderate to severe hearing loss in both ears.and she was going to need hearing aids. Well hearing aids were ordered and we picked them up.We also got aleesia into a school that was made to help children with hearing loss.and she did make some progress but it seemed to be slow aleesia had the hearing aids at almost 3 years old.and now she was 5 and we knew aids were not enough for her but we did not know what could help her at this point.We had heard about cochlear implants but that wasn't an option that was on the table yet.After seeing that aleesia was still struggling they came to us and told us about this test that tested something called ansd.This was something we had never heard of before but we wanted to do whatever would give us the answers to help aleesia.
she was halfway to 5 and a half years old when she was tested for ansd.she was sedated for the test another hard part for mommy but we had to do what was best for our baby. my mom went with me and we waited until the test was over with.We found out the results as soon as we came back.we were told that in fact aleesia was diagnosed with ansd.
This is a quick definition of what ansd is. if you want more info you can look it up online.Auditory nephropathy spectrum disorder (ANSD) is a type of hearing impairment caused by sounds not traveling to the brain effectively. Ear - internal. The ear consists of three parts, the outer ear, the middle ear and the inner ear.The tricky thing about ansd is that it is rare and not a ton of research out there and its difficult to diagnose as well. we were told that was why the hearing aids really weren't the solution we thought would help her was only amplifying the static aleesia was hearing.we were told about cochlear implants and how those would benefit her much better but also with having ansd it may not help but it was our best chance to help her .We decided to go with the implant and she was shortly implanted with her first implant in November of time went on she started to flourish not in the ways we hoped like being able to have full conversations with her and so on. but she was doing amazing she learned so many new words! two years after the first implant she was implanted with her second implant. Aleesia has been doing so well.We walk to support aleesia and many children and teens and adults like her.Please donate to this amazing cause! Me aleesia and her family are very grateful for any donations that we recieve. Thank you again!

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