Sponsor Me for the Garden State, NJ Walk4Hearing
This is our 11th year walking as Team Lexi in the Walk 4 Hearing. We started back in October 2008 when Lexi was 4 years old. Her hearing loss was new to me, she was diagnosed at age 2 with a potentially progressive form of hearing loss and a year later had lost all of her hearing in one ear and I was struggling as a parent to know what to do for her. What was her future going to hold? How was she going to handle this? How was I? I felt helpless which was why I signed myself and family up to do the walk as just a way to somehow get involved, show my support, be connected. It was the only thing I could think of doing to somehow help her. We started with a team of 4, a few more family members joined along that year and Team Lexi was born. Now flash ahead 10 years later and I could not have imagined how things would have evolved. Our Team Lexi took a life of it's own and our little team of 4 has grown into a team of over over 40 now filled with those who love and support Lexi.
Now on to my amazing Lexi 11 years later. She started out with 2 "ears" as we called them (her hearing aids). When she had her hearing tests the doctors and audiologists were all amazed at how well she spoke (and sang of course) because of the extent of her loss. At a very young age she was learning to not let it stop her. She learned by herself to read lips and pay attention to the cues around her. Then a year after she was diagnosed she lost all her hearing in her left ear. As a mother I was panicked. I had every bad and doomsday thought going through my head. I read way too much and assumed the worst. In my mind I thought how will she make it through school, will she have friends, willl she be able to play sports, dance. sing, will kids be mean to her, how will she overcome all this???? I obviously didn't know my own daughter too well. She now had one "ear" because the other "ear" wouldn't provide any help anymore. But my Lexi was not going to let anything stop her and was not going to ler her hearing loss get in the way of her doing anything. She has surpassed mine and everyone else's expectations and succeeds beyond belief! She is a bright, outgoing beautiful 14 year old who loves life! She is an excellent student making the National Junior Honor Society, loves playing all sports especially basketball. She loves, hanging out with her friends, and loves to be constantly involved in any and all activities - Lexi is happiest when she's the busiest! She loves dancing but her true passion is acting and singing and loves to be on stage - she has had many roles but her highlight was performing with the broadway cast of Chicago in Central Park. She amazes me and those around her on a daily basis of what she can accomplish despite the seriousness of her hearing loss. Her dream is to be a "star" someday and knowing Lexi, I wouldn't put it past her!! So really I can't believe I was worried about this girl!!. She is a true testament to giving it your all and then some! She may have to work a little harder than others to get where she needs to be but one thing about Lexi is she's not afraid of hard work and she won't give up!!!!! Thankfully since age 3 her hearing loss has remained unchanged and we continue to pray that it stays that way but even if it does decline I have learned my lesson - do not ever underestimate Lexi!
I am walking in support of her and all others who have hearing loss - to help bring awareness and attention to this disability which often goes unnoticed. Please support me in this walk but more importantly support "Team Lexi" and the special girl who I couldn't be more proud of!!! Thank You!